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East Texas teen advocates for cystic fibrosis

Stacey Spivey

POSTED: Tuesday, July 15, 2014 - 5:52pm

UPDATED: Wednesday, July 16, 2014 - 1:06pm

30,000 people in the U.S. are living with cystic fibrosis. It is a life-threatening genetic disease that affects the lung and digestive system. One of the thousands battling the disease is 12-year-old Maci. Her older brother, Blake Parrish, watches the toll this takes on his sister, and his family. "I see her in the hospital, i see her doing medication, 40 pills a day. There are kids facing death because of this disease and it would be great if they could help," said Parrish.

This is why he joined 70 other teenagers in Washington D.C. to speak in front of lawmakers about cystic fibrosis. "All of us were just kind of there for the same reason, to fight for our siblings," said Parrish. He added they're wanting to raise awareness, funding, and find a cure to help kids like Maci, and said, "its really important to me that this, like people know about this because she means a lot to me."

People like Holly Burke, director of the Northeast Texas chapter of the Cystic Fibrosis Foundation believes we should all follow in Blake's footsteps. She said, "its amazing that these kids take time out of their summer which is supposed to be all about fun, and to go up to Washington and speak about such an important information."

Blake said this is only the beginning, "I'm going to help raise money and I'm going to let people know all about cystic fibrosis, and they can help too, they can save lives."

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